The past few months have been a whirlwind of family firsts, emotional endings and upcoming uncertainty. Special needs conferences, new diagnosis for some, confirmed diagnosis for others after years of waiting, 18th birthdays, graduations, planning for major surgery, collage acceptance letters, guardianship hearings and never ending stream of doctor and therapy appointments. In all this...I have held tight to my sanity, all be it sometimes by a thread, due to my support system. I know that I am blessed to have one, and that not everyone has the luxury of a network of people who understand and can be there for you even when they may not understand what it is to be in your place. So I want to acknowledge the value of those who are and say thank you. Being a single mom of complex kiddos can be exhausting....the gratitude I have for the people that support us and keep me sane-ish is immeasurable. Thanks the short but sweet coffee dates. Thanks for ...
The idea behind spoon theory is that, people without a disability or chronic health condition wake with enough "spoons" to mange the tasks for the day . They expect to be able to attend to self care, home, work or school, and and social plans and not worry that they'll run out of energy, well before days end. “ The Spoon Theory ”, is used by many people dealing with chronic illness to explain what it means to go about life with limited energy, using “spoons” as a unit of energy. Spoon theory originates with the personal story of Christine Miserandino. In an attempt to help a friend better understand what living with lupus, a chronic autoimmune disease was like Mirserandino came up with spoon up with the concept. “How do I explain every detail of every day being affected, and give the emotions a sick person goes through with clarity. I could have given up, cracked a joke like I usually do, and changed the subject, but I remember thinking if I don’t tr...